[HacktionLab] medical confidentiality campaigning

[mark]

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Dear Hacktionlabers,

* PLEASE DISSEMINATE F.A.O. anyone campaigning for electronic privacy,
human rights (right to health, right to a private and family life),
and against commodification of personal information *

You all might have heard (if you live in the UK) that there's a big
change coming to the way your GP protects your privacy.

Previously, identifiable data was only shared with 3rd parties if it
was to assist in providing medical services to you; data for other
uses had to be anonymised. From this April however, your personal
information WITH IDENTIFIERS INTACT will be uploaded to a central
body, which will then sell it to anyone. Your GP is obliged to do this
unless you opt out.

You may have had some junk(snail)mail with misleading information
about this scheme. It tells you to speak to your GP practice if you
want to opt out. However if everyone who should opt out did this, your
GP and receptionist/secretary would be inundated and so unable to help
people when we need it most. Instead, here are some alternative
resources. Anyone who works in health and social care might like to
print a bunch of forms out and leave them in a waiting room.

Downloadable PDF opt-out form (suitable for a GP waiting room):
http://medconfidential.org/wp-content/uploads/2014/01/caredata_trifold.pdf

Two websites with more information:
http://optout.care-data.info/
http://medconfidential.org/

Cheers,
Mark
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